Finally.
For those who aren’t on facebook (I understand, really), you might have missed my jubilant post-blog update on Monday: THE TRIAL DRUGS ARE WORKING. Those nasty little grey capsules that make my mouth taste like a dirty ashtray are actually worth the loss of my taste for chocolate. (Sad but true.)
I climbed out of the PET scanner on Monday and (after a brief trip to the cafeteria for my first food in over twelve hours) went straight to the Phase I doctor’s office. His preliminary read of the scan thirty minutes later showed a “marked decrease” in the metabolism* of the cells in my calcified tumors and lymph nodes, the ones that we had pegged as stable. While he offered no opinion of the new mets in my lungs, and I’ll have to wait for a full radiologist’s report on the scan for that, he was very excited about the “dramatic” change in my tumors. He said that the trial had shown the best results for ovarian patients, and that they were thinking about designing a Phase II trial for ovarian patients based on the good results. Including mine!
I’m beyond thrilled to get some good news for the first time in eighteen months, and REALLY glad that all of this rigamarole that they (Big Pharma) are putting me through for this drug might actually have an impact on other patients of this crappy, insidious, sneaky-ass disease.
Next week: further results of the PET scan; CT scan and results, and a week off the drug. Rash? No rash? Increased energy? We’ll see.
But you can quit mentally divvying up my couture for the near future. Vultures.
*PET scans work by reading the rate that your cells metabolize an injected radioactive sugar solution. Cancer cells metabolize sugar at a much higher rate than healthy cells, so after sitting with the solution in your bloodstream for an hour, they run you through a scanner and read the “hot spots” that have metabolized the most radioactive solution. These are measured by the amount of radioactivity they emit, and the rates are compared from scan to scan.
Photo courtesy images.
I'm a two-and-a-half time ovarian cancer survivor who is not only determined to make it to sixty but also to look damn good while getting there. My two boys, husband, and dog are counting on me to get out of bed every day, so I might as well wear something cute and make each one COUNT. I'd love to hear from you about your odyssey - sharing makes it all easier to take. And laugh at.
The Carcinista 
tori said,
July 17, 2010 at 11:02 AM
The last line made me snarf my coffee. So thrilled about these results!
Dan said,
July 17, 2010 at 3:32 PM
Yay! I am really happy to read about your good news. I am celebrating your “turning of the corner” in treatment progress and hoping for a little of my own positive progress this week. I will probably have another PET scan soon and I could use some good news.
Dan
Jennifer said,
July 17, 2010 at 3:38 PM
You rock! The last line make me snicker too. Glad you have good news to share.
patricia said,
July 17, 2010 at 4:01 PM
Congrats on your amazing news!!! And fireworks are so appropriate for your chosen image!!! God bless you Sarah!! xx’s
Ann said,
July 17, 2010 at 9:46 PM
Fabulous news! Even if you have Louboutins in my size. 🙂
sandhy said,
July 18, 2010 at 4:16 AM
OMG – that’s amazing!! chuffed to bits for you!! really, really, really!! :o)
x
Stephanie said,
July 18, 2010 at 12:15 PM
Such wonderful news! So happy for you.
Addie said,
July 20, 2010 at 3:59 PM
Woohooo …. Yippeee … finally something good!