The Silent Treatment

May 27, 2010 at 8:51 PM (Energy, Family, friends, Mood, Treatment) (, , , , , , , , )

It’s so unusual that I haven’t posted anything this week. It’s not as if cancer has been far from my mind – quite the opposite, as I’m sure you can understand. It’s been hard to think about anything else. And yet, I haven’t felt like there’s been a post worth sharing kicking around in my brain.

Whenever I share bad news, I sort of hole up for a while. It’s not that I don’t want to talk to anyone, but I feel so BAD having to draw everyone’s attention back to me and my ridiculously persistent illness. I’d rather talk to you about Sex and the City 2, long weekend plans, chicken recipes, oh, ANYTHING else besides my effin’ lungs. I’m not sticking my head in the sand. I certainly don’t mind talking about it, but I hate knowing that my illness is causing distress. Which it is, don’t lie to me.

I know I’m not the center of the universe. But I can hear it in people’s voices, see it in their faces when they bump into me — they’re bummed I’m sick. I hate that. Not that you’re not allowed to feel your emotions around me, but I have a “no crying” rule for a reason. And I’m not past the angry-pissed-off-frustrated part of the bad-news-reception emotional cascade, so I’m not ready to cheerlead for myself yet. I’ll get back to you.

Have a great long weekend – maybe some time in the pool will cheer me up. Gotta get my Vitamin D, ya know.

Photo courtesy Edward Feather.

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More Cancer Karma

February 1, 2010 at 7:52 PM (Karma) (, , , , , , , , )

Once I had this blog up and running, I spent some time fleshing out the peripherals and racking up a pretty sweet blogroll. There are quite a few sassy cancer babes out there and some of them are terrific writers, too. It’s startling/depressing/comforting to discover that one or two of them seem to be living lives that are parallel to my own: young kids, solid marriage, suburban poster children, fighting like hell, still putting on makeup. Naming their wigs.

I don’t want to seem like I’m shamelessly trolling for readership, but the reason I started blogging in the first place (aside from a little ego-stroking) was to link up fierce cancer babes all over and build some support, outside of the established cancer communities, for keeping sane and surviving with your personality and sense of humor in tact. So I started dropping some comments on the blogs that really hit home – experiences I could relate to, really poignantly aching displays of honesty, hysterical tales of mishaps and chemo-induced forgetfulness. And one of the babes who read my comments and wrote back was My Name Is Not Cancer Girl, who’s knocking BC on its butt in the ATL while taking care of her family. And naming her wig. Now we read each other’s blogs and offer support and wiseacre commentary, just like I had hoped.

Last weekend I got an email from an old school friend (thank you, facebook) who wanted to introduce to me a dear friend of hers who’s fighting cancer, with a new bone metastasis, in Atlanta. I wrote back to say that I’m always happy (well, you know what I mean) to meet a new cancer chick and share tips, gripes, horror stories, etc. As I was writing the body of the email, I had a little tickle in the back of my brain… “Is there any chance she blogs? I asked. Bet you can’t guess the answer.

Karma? Coincidence? What do you think?

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Post-Chemo Brain Reboot

December 5, 2009 at 5:13 PM (Energy, Recovery) (, , , , , , , , , , , , , , )

It’s really amazing how my life has changed since October 8. I guess I’ve been on chemo or some other drug for enough months out of the past four years that I got used to being dulled around the edges. Like the aerator grill in my faucet had filled up with sediment, and the water that flowed was slowed to a trickle.

I’m not sure how much of my mental slowdown can be attributed to chemo brain and how much was due to my persistent, really frustrating fatigue. Anyone on chemo will tell you that forgetfulness becomes a way of life, and that you should probably put off your appearance on Jeopardy! until your hair grows back, if you’re really serious about winning. When you’re chemo-tired, and living your day from one sleep to the next (and there were definitely days like that), the last thing you have the energy for is coming up with a good blog topic or a killer craft to rock the next birthday party. But there’s also the possibility that the ass-kicking-name-taking process took most of the mental focus that I had outside of the eternal “what’s-for-dinner?” dilemma, and I completely lost all memory of being a smart person.

Now that I’m on the miracle drug, and my hair is growing in, and my body is (mostly) back under my control, it’s as if someone has CLR-ed my faucet and the water is running again. I wake up in the middle of the night and start thinking of things I’d like to do. Projects I’d like to complete. (Not just start, but complete!) Dishes I’d like to cook. Things I could make for Christmas presents. Stuff to write about. And when I wake up in the morning, I can actually remember the things I thought of in the dark.

I’m almost overwhelmed at the different trains of thought that I can keep track of at any given time. My mental soundtrack has been one or two notes simple for so long, I’d forgotten what it felt like to hear the full melody, harmony, counterpoint and rhythm rolling along with it. And far from being confused by the din, I’m enjoying hearing all the different notes, thinking about them individually, planning how to work on them, maybe even discarding them and moving on.

I’m not promising global domination, nor that my sedentary tendencies have been banished for good, but perhaps I’m starting to fit into these grown-up shoes I’ve been wearing for three-and-a-half years now. At least I’ll be better company at cocktail parties. And Alex Trebek should be quaking in his boots.

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